“The experiences, thoughts and opinions gathered from focus groups of children and young people were used to supplement the evidence from the systematic reviews. This work was commissioned to ensure the NICE guideline on Babies, children and young people’s experience of healthcare had input from children from the age of 4 upwards. The evidence from these focus groups was mapped to individual review questions and shared with the committee as part of the evidence for each review question, which enabled the committee to make evidence-based recommendations.“
This chapter describes ways to conduct public and targeted consultation during the development of guidelines. It aims to raise awareness of key issues to take into account when developing a consultation strategy and related processes, including best practice principles and different methods to consider.
The chapter draws on examples from guideline bodies in several countries, which serve as models. These models are provided for illustrative purposes only and are not meant to be prescriptive because local circumstances, and the level of support and resources available will influence the type of approach adopted.
The VOICE tool (Visioning outcomes in community engagement) provides planning and recording software that assists individuals, organisations and partnerships to design and deliver effective community engagement.
DIPEx International is an association of expert researchers conducting qualitative research into people’s personal experiences of health and illness. Member countries disseminate the results to the public and professionals in the form of multimedia resources on their websites. For example, healthtalk.org in the UK
Involve, part of the UK’s National Institute for Health Research, provides advice and guidance on public involvement in research (research carried out with or by members of the public). Involve resources contains briefing notes for researchers on how to involve the public in research.
Children and young people – Guidance from the National Children’s Bureau, a UK charity
People with Alzheimer’s disease – Toolkit from the Alzheimer’s Society, a UK charity.