|Focus groups for the NICE guideline on end of life care for infants, children and young people with life-limiting conditions: planning and management (NG61; 2016): Because of limited evidence and in the absence of representative views from the guideline committee, young people with life-limiting and life-threatening conditions were asked for their views and opinions on selected review questions. This included their preferences for place of care, information and communication provision, personalised care planning, and psychological care (Report, appendix L, NG61). |
Focus groups for the NICE guideline on self-harm in over 8s: short-term management and prevention of recurrence (CG16; 2004): The development of this guideline was informed by focus group discussions with people who experience mental distress and self-harm, in addition to a review of published and grey literature on their views and experiences. Both sources reported health services to be of variable quality. One finding from the group discussions was that people who self-harmed were not routinely offered anaesthesia for stitching their wounds in the emergency department. There was nothing in the literature to indicate this was an issue. As a result, the guideline included a recommendation that adequate anaesthesia and analgesia should be offered throughout the process of suturing or other painful treatments in people who have self-harmed. Other recommendations included staff training. See chapter 5 of the full guideline for further information.
Survey for the NICE guideline on sedation in under 19s (CG112; 2010): Guideline developers worked with a children’s hospital to survey children and young people about their views and experiences of sedation for diagnostic and therapeutic procedures. Hospital staff obtained feedback through hand-held touch screen computers, which young children can use. The survey results were found to be very useful for the guideline development group’s work. (See chapter 7 of the full guideline for further information.)