Our toolkit offers practical advice for guideline developers and others on involving patients and the public in guideline activities. We bring together international experiences and best practice examples of successful patient and public involvement (PPI). Our advice is based on published literature as well as the authors’ experiences of PPI activities and methods. The toolkit:
• describes different methods for PPI in developing and using guidelines, the pros and cons of these methods and the circumstances where they are most likely to be useful
• provides best practice examples
• describes the resources needed, the pitfalls to avoid, and the main barriers to address to achieve effective PPI in guideline development and implementation
The toolkit chapters are organised into three general involvement strategies: consultation, participation, and communication. For a more detailed explanation, see our earlier introduction on how to choose an effective involvement strategy.
Each chapter has a list of key messages, top tips and, in some cases, further resources.
This is a ‘living resource’ with updates and additions as experience, literature and methodology continue to evolve. You may need to adapt the methods described in the toolkit to suit your own environment, because social, political, and cultural contexts will affect the success and difficulties of PPI.
Your feedback required
Tell us what you think of our Toolkit by completing a quick survey.
We will use your feedback to make improvements and update the content.
Thank you for your help.
Who do we mean by patients and public?
People with personal experience of a disease, condition, or service (patients, consumers or users), their carers or family members, and people representing a collective group of patients or carers (representatives or advocates). It may also refer to members of society interested in health and social care services, or whose life is affected directly or indirectly by a guideline (citizens, taxpayers, the public).
This digital toolkit is also available in pdf format.