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Armstrong MJ, Mullins CD, Gronseth GS et al. (2018) Impact of patient involvement on clinical practice guideline development: a parallel group study. Implementation Science 13(1): 55

Bradley J, Quinlan B, Charlebois A (2019) The development and evaluation of a patient education pamphlet to promote shared decision making during treatment selection for patients with stable coronary artery disease. Canadian Journal of Cardiology 35(10 Supplement): S204

Brosseau L, Wells G, Brooks S et al. (2012) An innovative strategy to implement clinical practice guidelines for rheumatoid arthritis and osteoarthritis patients through Facebook. Arthritis and Rheumatism 64: S38

Campbell L, JIGSAW-E Patient Champions, Blackburn S et al. (2018) OP0346-PARE a partnership in implementation: adapting an osteoarthritis guidebook across european cultures – with patients, for patients. Annals of the Rheumatic Diseases 77 (Supplement 2): 218–9

DEBRA International (2019) Psychosocial recommendations for the care of children and adults with epidermolysis bullosa and their family: evidence based guideline.

DECIDE (2011-2015) Patients and public

Fernandes Agreli H, Murphy M, Creedon S et al. (2019) Patient involvement in the implementation of infection prevention and control guidelines and associated interventions: a scoping review. BMJ Open 9(3): e025824

Fischer F, Lange K, Klose K et al. (2016) Barriers and strategies in guideline implementation – a scoping review. Healthcare (Basel, Switzerland) 4(3): 36

National Institute for Health and Care Excellence (2004) Self-harm in over 8s: short-term management and prevention of recurrence. Clinical guideline 16

National Institute for Health and Care Excellence (2013) Rheumatoid arthritis in over 16s. Quality standard 33

National Institute for Health and Care Excellence (2014) Developing NICE guidelines: the manual. Process and methods guide 20

National Institute for Health and Care Excellence (2016) Motor neurone disease: assessment and management. NICE guideline 42

National Institute for Health and Care Excellence (2018) Rheumatoid arthritis in adults: management. NICE guideline 100

National Institute for Health and Care Excellence, Scottish Intercollegiate Guidelines Network, Royal College of General Practitioners (2020) COVID-19 rapid guideline: managing the long-term effects of COVID-19. SIGN 161

Santesso N, Morgano GP, Jack SM et al. (2016) Dissemination of clinical practice guidelines: a content analysis of patient versions. Medical Decision Making 36(6): 692–702

Schaefer C, Zowalla R, Wiesner M et al. (2015) Patientenleitlinien in der onkologie: zielsetzung, vorgehen und erste erfahrungen mit dem format. Zeitschrift Für Evidenz, Fortbildung Und Qualität Im Gesundhwesen. 109(6): 455–51

Schipper K, Bakker M, De Wit M et al. (2016) Strategies for disseminating recommendations or guidelines to patients: a systematic review. Implementation Science 11(82)

Scottish Intercollegiate Guidelines Network (2019) Children and young people exposed prenatally to alcohol. SIGN156

Scottish Intercollegiate Guidelines Network (2019) Risk reduction and management of delirium. SIGN157

Scottish Intercollegiate Guidelines Network (2019) SIGN 50: a guideline developer’s handbook

Scottish Intercollegiate Guidelines Network (2019) SIGN 100: A handbook for patient and carer representatives

Te Boveldt ND, Engels Y, Besse TC et al. (2012) Implementation of the Dutch clinical practice guideline pain in patients with cancer: a clustered randomised controlled trial with short message service (SMS) and interactive voice response (IVR). Palliative Medicine 26 (4): 455–6

Utrankar A, Mayo-Gamble TL, Allen W et al. (2018) Technology use and preferences to support clinical practice guideline awareness and adherence in individuals with sickle cell disease. Journal of the American Medical Informatics Association 25(8): 976–88

Vernooij RWM, Willson M, Gagliardi AR, members of the Guidelines International Network Implementation Working Group (2016) Characterizing patient-oriented tools that could be packaged with guidelines to promote self-management and guideline adoption: a meta-review. Implementation Science 11:52