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About the GIN PUBLIC Toolkit: Patient and Public Involvement in Guidelines

At the 12th GIN conference in Amsterdam, GIN PUBLIC proudly presented its updated Toolkit on Patient and Public Involvement in Guidelines. The toolkit assembles international experiences and best practice examples of successful patient involvement and aims at supporting guideline developers who consider involving patients in guideline development or dissemination.

Since its first launch, the toolkit has been discussed with guideline developers, consumers and patient organisations in workshops, webinars and at conferences. The GIN PUBLIC working group has learned from these fruitful discussions that it met a need by sharing experience rather that to prescribe what to do. However, these discussions have also revealed further topics that could be of interest for guideline developers or other toolkit users. The updated toolkit addresses these topics.  It will continue to be a living document.

What the Toolkit is about

After the introduction on how to choose an effective involvement strategy, the toolkit comprises ten chapters that provide advice on basic issues of patient and public involvement:

1.       How to conduct public and targeted consultation (2012)

2.       How to include qualitative research on patient views in guidelines (2015)

3.       How to recruit and support patients and the public in guideline development (2012)

4.       How guidelines can involve people facing barriers to participation (2015)

5.       How the chair can facilitate PPI (2012)

6.       How web-based technologies can support patient and public involvement (2015)

7.       Patient versions of guidelines (updated 2015)   

8.       Involving patients in guideline dissemination (2012)

9.       How guidelines can support patient involvement in the clinic (2012)

10.     Patient involvement in Health Technology Assessment (2015)


GIN PUBLIC Toolkit: Patient and Public Involvement in Guidelines

Page last updated: Dec 10, 2020
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