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Association of the Scientific Medical Societies in Germany (AWMF) – Ad Hoc Commission on “Deciding Wisely Together” (2020) A manual on developing recommendations within the “Deciding Wisely Together” Initiative. Version 1.3 of January 2020

Berry TR, Witcher C, Holt NL et al. (2010) A qualitative examination of perceptions of physical activity guidelines and preferences for format. Health Promotion Practice 11(6): 908–16

Betsch C, Renkewitz F, Haase N (2013) Effect of narrative reports about vaccine adverse events and bias-awareness disclaimers on vaccine decisions: a simulation of an online patient social network. Medical Decision Making 33(1): 14–25

Betsch C, Ulshöfer C, Renkewitz F et al. (2011) The influence of narrative v. statistical information on perceiving vaccination risks. Medical Decision Making 31(5): 742–53

Büchter RB, Fechtelpeter D, Knelangen M et al (2014) Words or numbers? Communicating risk of adverse effects in written consumer health information: a systematic review and meta-analysis. BMC Informatics and Decision Making 14: 76

Cronin RM, Mayo-Gamble TL, Stimpson S-J et al. (2018) Adapting medical guidelines to be patient-centered using a patient-driven process for individuals with sickle cell disease and their caregivers. BMC Hematology 18:12

DECIDE (2011 – 2015) Interactive summary of findings (iSoF) table

DECIDE (2011 – 2015) Patients and public

DISCERN online Quality criteria for consumer health information

Dreesens D, Stiggelbout A, Agoritsas T et al. (2019) A conceptual framework for patient-directed knowledge tools to support patient-centred care: Results from an evidence-informed consensus meeting. Patient Education and Counseling 102(10): 1898–1904

Frauenselbsthilfe nach Krebs [Womens Health Coalition] (2012) Inanspruchnahme des qualitätsgesicherten Mammographie-Screenings: Follow-Up Studie 2012; wissenschaftlicher bericht

Giguere A, Légaré F, Grad R et al. (2012) Decision boxes for clinicians to support evidence-based practice and shared decision making: the user experience. Implementation Science 7:72  

Glenton C, Santesso N, Rosenbaum S et al. (2010) Presenting the results of Cochrane Systematic Reviews to a consumer audience: a qualitative study. Medical Decision Making 30(5): 566–77

Guyatt GH, Oxman AD, Vist GE et al. (2008) GRADE: an emerging consensus on rating quality of evidence and strength of recommendations. British Medical Journal 336(7650): 924–6

Hartling L, Scott S, Pandya R et al. (2010) Storytelling as a tool for health consumers: development of an intervention for parents of children with croup. Stories to communicate health information. BMC Pediatrics 10: 64 

Hemilä H, Chalker E, Douglas B (2007) Vitamin C for preventing and treating the common cold. Cochrane Database of Systematic Reviews 3: CD000980

Knapp P, Gardner PH, Carrigan N et al. (2009) Perceived risk of medicine side effects in users of a patient information website: a study of the use of verbal descriptors, percentages and natural frequencies. British Journal of Health Psychology 14(3): 579–94

Loudon K, Santesso N, Callaghan M et al. (2014) Patient and public attitudes to and awareness of clinical practice guidelines: a systematic review with thematic and narrative syntheses. BMC Health Services Research 14:321

Nast A,  Sporbeck B, Jacobs A et al. (2013) Study of perceptions of the extent to which guideline recommendations are binding: a survey of commonly used terminology. Deutsches Arzteblatt International 110(40): 663–8

National Institute for Health and Care Excellence (2009) Depression in adults: recognition and management. Information for the public. NICE clinical guideline 90

Natter HM, Berry DC (2005) Effects of presenting the baseline risk when communicating absolute and relative risk reductions. Psychology, Health & Medicine 10(4): 326–334

Ottawa Hospital Research Institute (2020) Patient Decision Aids

Santesso N, Morgano GP, Jack SM et al. (2016) Dissemination of clinical practice guidelines: a content analysis of patient versions. Medical Decision Making 36(6): 692–702

Santesso N, Radar T, Nilsen ES et al. (2015) A summary to communicate evidence from systematic reviews to the public improved understanding and accessibility of information: a randomized controlled trial. Journal of Clinical Epidemiology 68(2): 182–90

Schaefer C, Brunsmann F, Siegert S (2017) Verlässliche Gesundheitsinformationen zu seltenen Erkrankungen: Die Anforderungen des Nationalen Aktionsplans und deren praktische Umsetzung [Reliable health information for patients with rare diseases: Quality demands defined by the National Action Plan and how they are put into practice]. Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz 60(5): 510–6

Schaefer C, Zowalla R, Wiesner M et al. (2015) Patientenleitlinien in der onkologie: zielsetzung, vorgehen und erste erfahrungen mit dem format. Zeitschrift Für Evidenz, Fortbildung Und Qualität Im Gesundhwesen. 109(6): 455–51

Scottish Intercollegiate Guidelines Network (2017) Autism. A booklet for patients, carers and families of children and young people

Scottish Intercollegiate Guidelines Network (2019) SIGN 100: A handbook for patient and carer representatives

Scottish Intercollegiate Guidelines Network (2020) Delirium. A booklet for people who have experienced delirium, and for their carers

Sentell T, Braun K L, Davis J et al. (2013) Colorectal cancer screening: low health literacy and limited English proficiency among Asians and Whites in California. Journal of Health Communication 18(Suppl 1): 242–55

Schwartz LM, Woloshin S, Welch HG (2007) The drug facts box: providing consumers with simple tabular data on drug benefit and harm. Medical Decision Making 27(5): 655–62

Shoemaker SJ, Wolf MS, Brach C (2013) The Patient Education Materials Assessment Tool (PEMAT) and User’s Guide. (Prepared by Abt Associates, Inc. under Contract No. HHSA290200900012I, TO 4). Rockville, MD: Agency for Healthcare Research and Quality; November 2013. AHRQ Publication No. 14-0002-EF. Agency for Healthcare Research and Quality

Stacey D, Légaré F, Col NF et al. (2014) Decision aids for people facing health treatment or screening decisions. The Cochrane Database of Systematic Reviews 1: CD001431

Stacey D, Suwalska V, Boland L et al. (2019) Are patient decision aids used in clinical practice after rigorous evaluation? A survey of trial authors. Medical Decision Making 39(7): 805–15

The Dartmouth Institute Option Grid decision aids

Trevena LJ, Zikmund-Fisher BJ, Edwards A et al. (2013) Presenting quantitative information about decision outcomes: a risk communication primer for patient decision aid developers. BMC Medical Informatics and Decision Making 13(Suppl 2) S7

Utrankar A, Mayo-Gamble TL, Allen W et al. (2018) Technology use and preferences to support clinical practice guideline awareness and adherence in individuals with sickle cell disease. Journal of the American Medical Informatics Association 25(8): 976–88

Van der Weijden T, Dreesens D, Faber MJ et al. (2019) Developing quality criteria for patient‐directed knowledge tools related to clinical practice guidelines. A development and consensus study. Health Expectations 22(2): 201–8

Winterbottom A, Bekker HL, Connr MT et al. (2008) Does narrative information bias individual’s decision making? A systematic review. Social Science and Medicine 67(12): 2079–80

Wolf MS, Gazmararian JA, Baker DW (2005) Health literacy and functional health status among older adults. Archives of Internal Medicine 165(17): 1946–52