Over the past year our GIN Public Working Group have been working on an exciting innovative project to update the GIN Public Toolkit: Patient and Public Involvement in Guidelines.

We are now delighted to launch the fully updated toolkit in a new, more accessible digital format on the GIN website.

The “Toolkit” assembles international experiences and best practice examples of successful patient involvement and aims at supporting guideline developers who consider involving patients and public in guideline development or dissemination.

The GIN Public working group produced the first version of the toolkit in 2012, which was then further expanded and updated in 2015. To deliver the latest update, the group surveyed GIN members to seek feedback on its use and areas for development.

The survey reinforced other feedback given to GIN Public on the usefulness of the toolkit, alongside the need for it to evolve and be updated. Feedback has been used to assist in the production of an updated and more user-friendly version, as well as increase awareness.  It is the group’s intention to continue to seek feedback from users to help with future updates.

Some of the improved features include new key messages and top tips for each chapter, plus additional resources and examples. The digital format is designed to make navigation easy and cater for a range of audience needs. It enables navigation between different topics and levels of detail, with key messages, top tips and additional resources highlighted at the top. This format will also support easier updating of parts of the toolkit as new examples and evidence comes to light. 

The new material includes:

  • how to overcome barriers to involving patients and public in developing guidelines
  • updated consultations strategies
  • NEW chapter on how to find and use research evidence on patient and public views
  • updated guidance on developing patient information
  • NEW chapter on how to foster shared decision-making through guidelines
  • updated advice and examples on involving patients and public in guideline dissemination and implementation

Lead authors, Chair and Vice Chair of GIN Public, Jane Cowl of NICE and Karen Graham of SIGN have been instrumental in delivering and coordinating the effort to get the toolkit to this stage. This includes working with a professional editor.

The project has also been fortunate to have the valued input from a member of the public who spent time on the review panel.  Kenneth McLean commented: “I became involved as a public partner with GIN PUBLIC due to my interest in patient and public involvement in patient centred care.

During this pandemic period of extreme pressure on all working in the healthcare environment, this diverse multinational group has persevered with tenacity to do the right thing on behalf of the public and patients and the result is an internationally co-produced toolkit which should be an invaluable resource for guideline developers all over the world. I feel very privileged to have been on part of this journey and have learnt so much from colleagues from all over the world.”