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Project board

Welcome to our project and collaboration board, where G-I-N members are given the opportunity to join working groups, get involved with work within the network and take the chance to highlight their own calls for collaboration to the international guideline community.

Project

AGREE II assessors for CLN2 guidelines

Care Beyond Diagnosis (CBD) is a US Based non-profit organisation which is devoted to providing support to patients and families regardless of geographic location or economic status. For the past 18-months, CBD has been coordinating and managing an independent consensus program aimed at developing an internationally accredited guideline for CLN2 Management.

As our team works with the expert committee to formalise the manuscript, we are eager to have the process evaluated and scored against the criteria of the AGREEII Trust. We are looking for individuals or a team to take on this process independently of our organisation and steering committee to formally score this program.

Please contact if you would be interested in taking this important project on.

Kind regards,

Jeffrey Donohue

Co-CEO, Care Beyond Diagnosis

Jeff@Carebeyonddiagnosis.org

615-293-8147

Websites:

The  Board and Secretariat are keen to involve members more in the activities of our network, so watch this board for opportunities to suit your skills and areas of interest.  

If you would like something to be posted on the Project Board email Jenna Docherty at

Comment board

Please send us your questions, views and notes of interest via this discussion board. We value your views and input.

Page last updated: Mar 16, 2020
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