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Webinar: Developing and Disseminating Patient Versions of Clinical Practice Guidelines: Feedback from Patients and the Public

This webinar, containing the presentation slides, is now available. Downloading, copying, reusing, or distributing this document is not permissible.

The comprehensive information in clinical practice guidelines represents an excellent source of information which can be communicated to patients and the public. Today, many guideline organisations write and provide some type of patient version of their guidelines. One stream of the DECIDE project ( is exploring how to disseminate guidelines to this audience. We present the results from focus groups in patients and the public, a review of the literature about their views about guidelines, a content analysis of patient versions currently available, and user testing. We have found that people want information from guidelines for a variety of purposes, including to manage their own care and as reassurance about the care they receive. But they have difficulty determining what guidelines and recommendations apply to their own situations. Based on some examples of patient versions which meet these needs and our user testing, we are developing guidance about how to write patient versions and are incorporating the guidance into the Guideline Development Tool/GRADEpro software ( to facilitate the production of patient versions from guidelines.

Recording of the webinar

  • Feb 05, 2015
  • not set
  • Webinar
  • 1:30 hours
  • Download






Nancy Santesso, RD, BASc, MLIS, PhD
Assistant Professor at the Department of Clinical Epidemiology & Biostatistics
McMaster University, Canada


Shaun Treweek, BSc, PhD
Professor of Health Services Research at the Health Services Research Unit
University of Aberdeen, UK



Marguerite Koster, MA, MFT
Chair, G-I-N/North America Steering Group


Learning Objectives:


1. Understand the difference between clinical and patient/public versions of clinical practice guidelines.
2. Learn what patients want from clinical practice guidelines and how they use this information
3. See different formats of patient versions of guidelines and how they will be incorporated into the Guideline Development Tool/GRADEpro software.

Page last updated: Jul 24, 2016
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